Health Associations

Health AssociationsHealth agencies provide a wealth of educational opportunities, patient support, fundraising initiatives, and research. However, it is important to remember that they often receive money from pharmaceutical companies and the conventional medical industry so there is the potential for biased information.

The sites following are organized alphabetically by condition. Given the length of the list, not all sites include descriptions (click the purple links below to jump to those resources):Anxiety / Mental HealthAutoimmune DiseaseArthritisAsthma, Respiratory Diseases & AllergiesCancerDiabetes / EndocrinologyDigestive DisordersHeart DiseaseWomen’s HealthMiscellaneous

Anxiety & Mental Health

American Psychiatric Association of America
www.psych.org

American Psychological Association
www.apa.org

Anxiety and Depression Association of America
www.adaa.org

The International Society of Mental Health Online
www.ismho.org

Gateway to Post Traumatic Stress Disorder(PTSD) Information
www.ptsdinfo.org

Autoimmune Disease

General Information – Autoimmune Disease Fact Sheet

Medline Overview on Autoimmune Disease – http://www.nlm.nih.gov/medlineplus/autoimmunediseases.html

American Autoimmune Related Diseases Association – www.aarda.org

Specific Autoimmune Conditions

American Vitiligo Research Foundation
www.avrf.org

Graves’ Disease & Thyroid Foundation
www.gdatf.org

International Pemphigus & Pemphigoid Foundation
www.pemphigus.org

Lupus Alliance of America
www.lupusalliance.org

Lupus Foundation of America (LFA)
www.lupus.org

Myasthenia Gravis Foundation of America
www.myasthenia.org

The Myositis Association
www.myositis.org

National Adrenal Diseases Foundation
www.nadf.us

National Alopecia Areata Foundation
www.naaf.org

National Multiple Sclerosis Society
www.nationalmssociety.org

National Psoriasis Foundation
www.psoriasis.org

Platelet Disorder Support Association
www.pdsa.org

Scleroderma Foundation
www.scleroderma.org

Sjogren’s Syndrome Foundation
www.sjogrens.org

Transverse Myelitis Association
www.myelitis.org

Vasculitis Foundation
http://vasculitisfoundation.org

Vitiligo Support International
www.vitiligosupport.org

Arthritis

American College of Rheumatology
www.rheumatology.org

Arthritis Foundation
www.arthritis.org

The Johns Hopkins Arthritis Center
www.hopkins-arthritis.org

Asthma, Respiratory Diseases & Allergies

American Lung Association
www.lungusa.org

Coalition for Pulmonary Fibrosis
www.coalitionforpf.org

North Carolina Department of Health and Human Services, Asthma Program
www.asthma.ncdhhs.gov

Cancer

Annie Appleseed Project
www.annieappleseedproject.org

Anticancer Lifestyle Program
https://anticancerlifestyle.org/

Best Answer for Cancer Foundation
www.bestanswerforcancer.org

CAM Cancer
www.cam-cancer.org – Complementary and alternative medicine assessment in the cancer field

Cancer Treatment Centers of America
www.cancercenter.com

Commonweal
www.commonweal.org

Embodiworks Integrative Cancer Care
www.embodiworks.org

Fibrolamellar Cancer Foundation
www.fibrofoundation.org

Insulin Potentiation Therapy for Cancer
www.iptforcancer.com

The MD Anderson Cancer Center Complementary/Integrative Medicine Education Resources
http://www.mdanderson.org/education-and-research/resources-for-professionals/clinical-tools-and-resources/cimer/index.html

Memorial Sloan-Kettering Cancer Center, Integrative Medicine Service
www.mskcc.org/cancer-care/integrative-medicine

University of Florida, Shands Cancer Center
www.ufscc.ufl.edu

The University of Texas, MD Anderson Cancer Center
www.mdanderson.org

Diabetes / Endocrinology

American Association of Diabetes Educators
www.diabeteseducator.org

American Diabetes Association
www.diabetes.org

Center for Traditional Medicine
www.centerfortraditionalmedicine.org

Diabetes Actions, Research and Education Foundation
www.diabetesaction.org

EmPower
http://www.empoweryourhealth.org – Site focuses on diseases of the endocrine system including thyroid conditions, diabetes, adrenal disorders, and osteoporosis.

Digestive Disorders

American College of Gastroenterology
www.acg.gi.org

American Gastroenterological Association
www.gastro.org

Celiac Disease Foundation*
www.celiac.org

Crohn’s and Colitis Foundation of America
www.ccfa.org

Crohn’s and Me
www.crohnsandme.com – * this is not an association site, and appears to have pharmaceutical ties. Still if offers a wealth of information on nutrition and living well with Crohn’s disease.

Gluten Intolerance Group*
http://www.gluten.net – offering support, advocacy and education on and for gluten intolerances, celiac disease, dermatitis herpetiformis, and other gluten sensitivities.

National Foundation for Celiac Awareness*
http://www.celiaccentral.org – provides gluten free cooking videos, recipes, and education on the gluten free lifestyle.

*You can find additional Gluten Free Websites on my other blog (www.webhealthwriter.com/blog/)

Heart Disease

American Heart Association
www.americanheart.org

Cardiology Today
www.cardiologytoday.com

Women’s Heart Foundation – The National Coalition for Women with Heart Disease
www.womenheart.org

Women’s Health

Endometriosis Association
www.endometriosisassn.org

Healthy Women
www.healthywomen.org – a nonprofit organization that offers a wealth of information on women’s health topics.

Society for Women’s Health Research
www.womenshealthresearch.org – The SWHR has an excellent e-newsletter that provides the latest health news on a variety of women’s health issues.

Miscellaneous

American Chronic Pain Association
www.theacpa.org

The Foundation for Sarcoidosis Research
www.stopsarcoidosis.org  – a site for sarcoidosis patients that includes a patient forum.

Health on the Net Foundation
http://www.hon.ch/pat.html  – a nonprofit organization that sets standards for quality information online. The content of this site (www.HappyHealthHer.com) strives to meet the HON Code of standards.

National Health Council
www.nationalhealthcouncil.org – an advocacy group for those with chronic illness. For information on specific illness check out their Resource Directory.

National Sleep Foundation
http://www.sleepfoundation.org

National Kidney Foundation
www.kidney.org

National Organization for Rare Disorders (NORD)
http://rarediseases.org – a nonprofit group dedicated to helping those with rare conditions.

National Osteoporosis Foundation
http://www.nof.org

Patient Advocate Foundation (PAF)
http://www.patientadvocate.org  a nonprofit organization that provides “professional case management services to Americans with chronic, life threatening and debilitating illnesses.”

[Last Updated: 6/6/22]

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