Patient Sites & Blogs
Similar to online health forums, patient websites and blogs don’t always contain the most reliable health information. However, they do offer the patient perspective which is vital for anyone who is trying to navigate the health care system. In addition, when patients have a real interest and passion for natural healing, the content can be rich with healthy advice.
Advocacy for Patients with Chronic Illness
www.advocacyforpatients.org – Founded by Connecticut Attorney, Jennifer Jaffe, a passionate advocate for patients dealing with the challenging health care system. Jennifer passed in the summer of 2012 after a long battle with Crohn’s Disease. Her legacy lives on through the agency’s work.
Heal With Hope
www.healwithhope.com – A site from patient Andrea Chervenak that offers inspiration and information on natural healing treatments.
GFE – Gluten Free Easily
http://glutenfreeeasily.com – loads of gluten free recipes and information from Shirley Braden.
But You Don’t Look Sick
www.butyoudontlooksick.com – site from founder, Christine Miserandino, a Lupus patient dedicated to educating people on invisible illness.
Other Great Patient Sites
After Stroke Party
www.afterstrokeparty.com – a site by a young woman who recovered from a stroke.
www.autoimmunegal.blogspot.com – just what it says! A woman with autoimmune disease shares her struggles.
Larry Berkelhammer, Ph.D
www.larryberkelhammer.com – a psychotherapist with three autoimmune diseases (ankylosing spondylitis, subclinical inflammatory bowel disease, and immune thrombocytopenic purpura) who discusses
The Bravest Little Toaster
bravestlittletoaster.wordpress.com – wins the award for cutest title ever! This site from Emily Lemiska explores the challenges of living life in pain due Klippel-Feil Syndrome.
A Chronic Dose
www.achronicdose.blogspot.com– a blog from patient (PCD, bronchiectasis, celiac disease) and author, Laurie Edwards.
http://dearthyroid.org – a site where people with thyroid disease can write letters to that pesky organ.
A Different Normal – Living with a Chronic Condition
The Elaine Moore Graves’ Disease and Autoimmune Disease Education
www.elaine-moore.com – a site from patient and author, Elaine Moore.
The Feeding Edge
http://thefeedingedge.com – “a place created using art, pop culture, and stories of living with chronic illness in a positive and unique way.” The site is focused mainly on Ankylosing Spondylitis.
Getting Closer to Myself
http://gettingclosertomyself.blogspot.com – a personal blog from a woman with Lupus.
www.ibstales.com – a site on irritable bowel syndrome (IBS) from patient Sophie Lee.
Inflamed & Untamed
www.facebook.com/Inflammed.Untamed – a Facebook page from Sara Ringer offering support for Crohn’s & Colitis.
Island Meets City
www.islandmeetscity.com/autoimmunees – a blog with special sections for “autoimmunees” from Lariana, a 20-something with Rheumatic Heart Disease
http://jennifersway.org – A site/nonprofit from actress Jennifer Esposito on living with celiac disease. The site sells products, but the profits raise awareness and promote education on celiac.
Keep Working Girlfriend
http://keepworkinggirlfriend.com – Rosalind Joffe, author, consultant and patient with MS wants you to keep working. She and partner Joan Friedlander offer advice and services to help you do just that.
http://reasonablywell-julia.blogspot.com – a retired nurse living with Sjogren’s Syndrome.
UII – Understanding Invisible Illnesses
http://myuiiblog.blogspot.com – autoimmune disease is often invisible, this blogger raises awareness of this fact.
www.wegohealth.com – a site for health activists.
http://zenfullydelicious.com – a site by numerous patients with food allergies, fibromyalgia and more. It covers beauty, fitness, and healthy eating.
[Last Updated: 2/26/16]